I got some not-good news today. I wouldn't call it bad, per say, but at camp I would call it an opportunity. I've been seeing a variety of doctors (orthopedic, and neurologist, mostly) for the past 4 months, trying to figure out why I've been having foot pain and swelling for the past year +. Today, my neurologist diagnosed me with Complex Regional Pain Syndrome, or Reflex Sympathetic Dystrophy Syndrome. What that means is.... well, I don't really know.
Doctors don't really know what specifically causes CRPS, and there's no cure, but they do know that it is triggered by a trauma (I sprained this part of my foot in the fall of '06) and instead of healing the injury, the nervous system stays continually aggravated. In my case, they injected a dye into my bloodstream and did a bone scan, which showed increased absorbency in the region - a sign of increased blood flow to the area - a sign of CRPS, I'm told.
Thankfully, my case seems to be milder (according to my PT) because nothing beyond the exact region of injury is affected (mine is limited to the abductor hallucis muscle and the surrounding bones). Hopefully, it stays this way. I don't know what treatment will be yet, but it's mostly to manage pain and swelling, not to heal or eliminate.
Sorry if the post bored you. Pray for me as I try to work all of this in with a busy first year of teaching and still trying to adjust to a totally new place. Pray that I rely on others to help me (that's hard for me), that I'm vulnerable when needed, that I don't worry, and that I make wise choices about medicine, treatment, etc.
4 comments:
Yikes, Amy. That's not good. I wish it was something you could heal more easily. I'm glad you're getting answers- I wish they were more hope-filled answers for ya.
i'm just glad it's not the shoulder you hurt playing star wars...
i'll be praying for you!
Hi Amy!
I'm sorry to read of your diagnosis. Don't give up hope of remission and be sure to get a quick treatment plan. Early intervention with blocks, etc can make an amazing difference if done in time (in many patients).
I run an RSD support forum where I see many people who are treated successfullly after a quick diagnosis and beginning treatments as soon as possible.
Best of luck to you!
Sincerely,
Meme
Admin
rsdsupport.com
Lots of good info at:
www.rsdsa.org
www.rsdhope.org
www.rsds-crps-news.blogspot.com
Also... check into Hyperbaric Oxygen Therapy... showing some promising results...
http://rsdtherapy.com/hyperbaric
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